april 9/HIKE

60 minutes
Minnehaha Falls Off Leash Dog Park
40 degrees

With the sun, it felt warmer down in the floodplain forest, although my hands are still cold many minutes later even though I wore gloves. I don’t like the cold hands, but I didn’t mind the cold air. So many wonderful deep breaths — in and out, in and out.

The trees are still bare, so FWA and I could see far in any direction. For the entire time, FWA was telling me the story of the latest video game he’s been playing, Clair Obscura. So good — both the game (at least as I understand it from FWA’s description) and FWA’s describing of it. His excellent way of describing the games to me reminds me of how I enjoy New Yorker book reviews as something about and entirely separate from the acutal book they are reviewing. Often the review is better than the book. I’m not saying that’s true of the video game, although I guess it is for me because I don’t play video games (partly because I miss a lot details that I can’t see).1

I love hearing FWA’s accounts; he’s so good at them. They require my full attention and engagement — which is a good thing, and a hard thing (hard because it is hard to stay focused and not get distracted for that long with so many interesting ideas, and because FWA gets frustrated and can tell when I’m not fully listening). Even as I listened to and engaged with FWA’s story, was I able to give attention to the river and the trees and the bluffs? Yes! Here are 10 things I noticed:

10 Dog Park Things

  1. at the top of a small rise: a HUGE tree with a girth wider than 2 of me could hug. Wow!
  2. tree tableau: one tree bent over in an arch across the path, another tree leaning in and onto its trunk, the next tree in the middle of the sandy path just on the other side of the arcj
  3. talking with some dog walkers, feeling one of the dog’s behind me, putting its snout under my coat and sniffing my butt
  4. bright blue sky with a few fluffy clouds
  5. a thin white foam near the shore
  6. the sharp, foul smell of Delia’s poop as I tied up a poop bag
  7. greeting another walker — good morning, what a beautiful day!
  8. a pileated woodpecker, laughing
  9. a thick wall of bare trees on the other side of the chainlink fence
  10. a guy with 2 dogs, talking — I think into a bluetooth, but maybe just to himself?

Returning to #2 and the tree tableau: I wanted to stop and take a picture of this beautiful image but I knew that would upset and derail FWA and I’ve learned the hard way to respect that and to recognize that it is part of his ADHD/(possibly) autistic brain. I was planning to write all of this in a footnote, but then a song came on, “People Take Pictures of Each Other” from The Kinks, and I had to put it on stage, here in the text. It opens with these lines:

People take pictures of the Summer
Just in case someone thought they had missed it
And to prove that it really existed

Was Ray Davies reaching through time to sing this to me? Improbable as that is, wouldn’t it be cool? I guess, from one perspective, he is!

grids — lines — strings — threads — yarn

note: I began writing this after coffee and a substantial breakfast of blueberries and yogurt and granola. Lots of thoughts from here to here to here that I think was influenced by that coffee and food!

There are many ways to think about grids, and many ways that I like them. Today I am thinking about the lines and how they connect and locate and tether us to worlds, to people, to logics, to meaning and language and words. I’m thinking about this metaphorically and literally. The Amsler Grid is made up of ink lines. Can I represent it in my visual poem as string and thread and yarn?

A few minutes ago, yarn as telling a story popped into my head and I wondered what the origins of that expression were. It’s nautical:

“story, tale,” often implying “marvelous, incredible, untrue,” colloquial, by 1812 in the figurative verbal phrase spinning a yarn (also yarning).

It is said (by 1823) to be originally nautical, a sailors’ expression, from the custom of telling stories while engaged in sedentary work such as yarn-twisting

yarn — etymology

So many directions I could go with these ideas. I love this idea of thinking about the grid and the material/meaning of its lines. In a New Yorker article that I’ve already used for at least 2 (maybe 3) sections of Holes 5, the phrase, pull the strings, appears. I noticed last week and put it aside. Now I’m thinking of shifting my poems from Holes to Threads (or strings or lines). Whereas the rule with Holes poems is that “hole” had to be in the text, I’m thinking of being more flexible with this new direction: maybe, for each new essay/article that I use, I find a different name/word for connecting lines. I already have strings (from “Mystery Man”) to work with. And, I found another article, about Arundhati Roy’s new memoir that has “hole” AND “thread.”

Another related thought: Lines, especially on a rigid grid, don’t always connect us in welcomed ways. They can tie and bind and trap us too. There’s a tension with lines and strings and threads: we want to be connected, and we want to break free from the connections that do harm to us. Entangle2 and unravel. Entangle and unravel.

Okay, I started this thought in footnote 1, but I’m bringing it back up here. I’m thinking about evidence boards (or murder boards or red string boards) and how they map out a crime. I don’t see my vision loss as a crime, but I do see it as a mystery — not to be solved, but to be mapped and located and witnessed — yes, witnessed!

And now, after hiking at the dog park and eating lunch and doing the dishes, I’m attempting to return to these ideas and dig deeper into them. But, it’s hard to get back i that flow.

Maybe creating a list of tasks?

  • think/read/experiment more with murder boards: redo the second holes and put it on a (card)board back with yarn and pins
  • begin a new playlist: grids, lines, strings, threads
  • make a poem with strings in it out of the “Mystery Man” article
  • give some time to Holes 6 and its hole and thread found in the New Yorker book review, “What to Make of the Mother Who Made You?”
  • create the proportionately bigger scotoma template for Holes 5b, experiment with placing it or tracing it over the words of the article
  • revisit the erasure collection, a splendid catastrophe for inspiration

Okay, lots of ideas. Let’s return to the one we started yesterday — 5b and the two holes and figuring out how to represent those 2 holes on the page (1 hole — the very small amount of central vision I still have left, 1 hole — the fuzzy, filmy, fading/faded central vision graveyard that surrounds/encircles what’s left — hole 1 = the word / hole 2 = the void or wall or circle that encases/entombs the word and is always waiting to consume it.

A visual inspiration for the dark/light contrast in this poem and in my experience of the holes as I read words on a page:

the image is dark except for two white ovals with blue dots
bright eyes in the dark

In my memory, Alice’s eyes were much brighter than I can see in this image. Something to think about: my version/vision of the dark due to my blind spot is never like this; I mean, it’s not all black. When looking at faces in can be a dark, smoky/smudged gray. When looking at words, I might see a faint dark ring. Sometimes it’s fuzzy or static — it’s not Nothing; it is something that is always moving. And here’s where I can get into Alice nonsense speak: It is not that I see Nothing; I don’t know that the something that is there is missing for me. I see no thing, without knowing that I’m seeing nothing. I think I need to work on that explanation.

But, back to the inspirational image. I like the contrast and the white eyes against the background. Do I want to make my word holes look more like eyes in this one? If I can do it without looking cheesy, yes!

I hope all of this makes sense to future Sara. Now, time to create my supersized scotoma!

update, a few minutes later: I started to think about how I might create the bigger version. There are probably many ways that are obvious to people who make things, but I have not been a maker and it’s all new to me. I like the idea of re-creating the grid, just bigger. Suddenly a thought: doesn’t the artist Chuck Close do (or, didn’t he do) something like this to create his portraits? Yes! He’s one of the most famous artist-users of a grid. Minneapolis Institute of Arts (MIA) has several of his works, but none can be viewed right now. The Walker has some too — I can’t readily see if they’re available for viewing. Some deeper digging is needed.

Here’s a video on how to use it:

Chuck close and the grid

And here is a great resource: Chuck Close at the Walker

Almost every decision I’ve made as an artist is an outcome
of my particular learning disorders. I’m overwhelmed by
the whole. How do you make a big head? How do you make
a nose? I’m not sure! But by breaking the image down into
small units, I make each decision into a bite-size decision.
I don’t have to reinvent the wheel every day. It’s an on-
going process. The system liberates and allows for intuition.

†National Gallery of Art
  1. file this with my Holes/Grid discussion: in thinking about all the ways I’m expressing something about myself through this series, I’ll add the significance of using the New Yorker and some book reviews. I love these book reviews and the access they give me to words/worlds that would otherwise be inaccessible (also thinking of the fun section on NY events and the restaurant reviews). Using New Yorker articles in these found poems is a way to reference that; it’s also a way to be able to still read them: slow, repeatedly, in strange order, and one word at a time. ↩︎
  2. I looked up, opposite of unravel, and found twist, knot, tangle, entangle. I love the idea of entanglement! Reading more of the Merriam-Webster entry, I read about unraveling a mystery/solving something, lessening the confusion. Yes! These ideas return to something else showing up in my visual poem: the image of a crime board — what is it called — where you put pictures of the suspects on a board and then use string or yarn to link them. I should read up on that concept some more, maybe watch some movies or shows that use it?! Is this linking used in other things that don’t involve solving a crime? How do I google that? ↩︎

april 7/RUN

4.1 miles
river road, north/south
39 degrees
wind: 10mph / gusts: 15 mph

Boo to the cold, although it only really felt cold during my walk warm-up. Maybe the boo should be reserved for the wind which was directly in my face running south. But, even with the wind and the cold, there was sun and clear paths and birds and open water. Spring! My legs and back felt strong, and my feet were locked into a steady rhythm. I encountered at least one large-ish group of runners, many groups of walkers, dogs. No roller skiers. Any bikers? I can’t remember. At least one stroller.

Running north, I listened to my feet striking the ground and birds chirping. Running south, I put in my “I’m Shadowing You” playlist. Song I remember most: “Shadow Stabbing” by Cake.

My anxiety has returned, which is a bummer, but not unexpected. There are so many reasons it could be back (I mean, looking at the news for today — Drump’s deadline for Iran is tonight — JFC). My latest theory: I am experiencing another vision shift (more cones lost?) that sometimes makes me feel dizzy. Dizziness triggers (mostly) mild physical panic. Combine that with hormonal changes, thanks to perimenopause. Nothing too overwhelming, but still draining and uncomfortable. I understand the anxiety better now than a few years ago, but that doesn’t mean I can anticipate it. Before my run, I felt a little dizzy. That dizziness (or imagined dizziness?) lingered a little during the run then returned right after. Sigh.

added later in the day: Finishing this entry up at my desk, I saw the shadow of a bird fly by which reminded me of the bird shadows this morning as I ran. It happened more than once, a dark something flying over my head as I ran: a bird’s shadow!

grids and holes and reading

My Holes series has several elements: the hole, the grid, reading. All of them are important in these visual poems. Also important: these are visual poems. The words in them matter as much (or more? or on the same level?) as the visuals.

What am I trying to express with this series? The strange and strained and magical way in which I can still read words even with most of my central vision gone. The progression of my declining ability to see words and its untethering effects.

a couple hours later: Playing around with my first Holes, this morning, I focused on figuring out how to connect the sections of the poem, to map the path from word to word to word on the page. That process of reading is key to this series1. After ruminating, which frequently meant standing and staring at the poem on cardboard, trying to figure out how to make this rectangular 4-panel poem fit into the square of an Amsler Grid, I came up with something to try. Fasten the poem panels to cardboard by placing pins next to the words of the poem, then connect/map the words with black thread. When I tried that, the thread was more fiddly to work with than my eyes and hands liked, and it didn’t show up that well:

black thread map / Can you see the thread? Just barely, for me.

So I tried dark gray thread, which was easier to work with and showed up much better. Maybe as the series progresses and my tether to the world through words weakens, I’ll use thinner, less visible thread?

gray yarn

One thing to fix for a different version: adjust the pin so that the thread line between with and word doesn’t cross the center — to do this, possibly switch to another “the” lower on the panel.

I like the yarn better! I realized that one of the key elements of this poem is to show the process of reading, the act of jumping from word to word to word, how the connections between words are increasingly complicated and convoluted. As I was thinking about that mapping, I remembered some images that I’ve seen several times and that Scott mentioned the other day: a spider’s web after taking various drugs . Here, lines = grids = webs!

The next experiment = putting the 4 paneled poem on cork board, using gray yarn and push pins. Another thing to add: draw more holes (circles), color them in with pencil, then erase them to leave a ghost (afterimage-ish).

during the run: holes

During the run, I thought about printing the New Yorker article on graph paper and adding an x and y axis for plotting the words. I might do that for a few of the Holes — as my vision gets stranger, so do the names of x and y. Maybe Holes 1 is x = time and y = space. Another Holes could be x = real and y = imagined. I should look through the other poems and determine their x and y axis.

questions: Are the lines from the Amsler grid (that is, the lines that make up the grid) and the lines that connect the words and map them on the visual poem the same? Can they sometimes be the same in one poem, and different in another? (note from 16 april: I’m not sure what I mean here with the same and different lines.)

  1. A thought as I wrote this sentence: part of the process of moving from word to word is running into words on a line that I didn’t see. In my Plague Notebook, I have countless examples of visual errors in which I write words on top of each other. This works differently in reading — in reading, I only see the word I am reading — but it connects. This not seeing + words on top of each other could be represented by the increasing jumbled way my lines from word to word are mapped. ↩︎

april 6/RUN

4.35 miles
minnehaha falls and back
32 degrees / feels like 17

Cold again. Because of the low feels like temp, I overdressed: 2 pairs of tights, long-sleeved shirt, sweatshirt, pullover. Halfway through I ditched the pullover, which was awkward as I struggled to take it off without removing the outer layer.

Tried to stay steady and slow. Chanted in triple berries in my head. Took several walk breaks — not because I was tired, but to take pictures or to record my thoughts or to take off my second layer.

Thought about grids and nets (more on this below) as I ran. Recorded some thoughts on my phone:

recording 1: I’m thinking about grids and the lines and why it matters to me. And I’m thinking about the xy axis and a map and the visual field. And mapping and locating yourself within the known world and how reading is so important to that locating and figuring out how to navigate without that.

recording 2: Thinking more about why nets or grids or that particular way of being located is to be held, to be connected, to be located, to be seen or recognized or have others aware (of you). So not in this free fall. To orient yourself in some way. To not be entirely unmoored. Because as fun as it sounds in theory to be untethered and unlimited by these restrictions, physically it does not feel good. Dizzy, disoriented, nauseated (sometimes). A slow, growing anxiety.

This last bit about the ill effects of being unmoored was inspired by how I felt as I started my run. It wasn’t entirely unpleasant, but I did feel a little dizzy and disconnected from the path, unable to clearly see what was ahead of me. I wasn’t blind to the trail or anyone on it. I was disoriented and anything I saw was vague and barely formed. This way of seeing unsettled me; it also made everything feel dreamy and not real or unreal or surreal. By the end of the first mile, it had dissipated somewhat.

So, why the Amsler grid? First, the obvious: it’s a vision test and I am writing around (and through) vision tests in much of my vision/visual poetry. Another explanation: it represents a mapping, a locating, a connecting to the known world (where known partly = “normal”/medical understandings and models of seeing). Also, it is a reference point from and a starting point that readers can understand (a place of common ground, a concrete and easily expressed and understandable model and map for blind spots in central vision/visual field).

grids / nets

I was planning to study worms and bugs for my April challenge, but that will have to wait. This month is about grids and nets and matrices. I chose this topic because I want to dig deeper into the grid and what role it plays in my Holes series, and also because of a series of pieces that AMP pointed out to me at MIA (Minneapolis Institute of Arts):

text: Charles Gaines
Numbers and Trees: Tiergarten Series 3: Tree #1, #2, #4, #6
Charles Gaines / Numbers and Trees

I found a book from one of his exhibits and requested it from the local library. When I get it, I’ll discuss the grids more. (I also plan to return to MIA soon to study the pieces more closely). Here’s one photo of them that I particularly like of me, FWA, and RJP, who is talking with her hands in a way that I love.

3 people -- a son, a daughter, their mother -- stand in front of a series of trees. The daughter gestures with her hands.
3 people looking at art, 2 of them talking about it, one with her hands

. Heading out for my run this morning, I wanted to notice grids. A few minutes later, all I could think about was the twisted/bent fence at the falls that I noticed last Thursday. I regretted not stopping to take a picture of it then, so I took several today. Here are 2:

Remembering this crooked fence and then taking pictures of it, inspired me to expand my grid/net/matrix month to fences too — this fence + chainlink fences. Things that contain, orient, map, frame.

To start this grid exploration, some research on the Amsler Grid. Have I done any research about it in past years? Not that I can find!

Amsler Grid

The Amsler grid, used since 1945, is a grid of horizontal and vertical lines used to monitor a person’s central visual field. The grid was developed by Marc Amsler, a Swiss ophthalmologist. It is a diagnostic tool that aids in the detection of visual disturbances caused by changes in the retina, particularly the macula (e.g. macular degeneration, Epiretinal membrane), as well as the optic nerve and the visual pathway to the brain. An Amsler grid can show defects in the central 20 degrees of the visual field.

In the test, the person looks with each eye separately at the small dot in the center of the grid. Patients with macular disease may see wavy lines or some lines may be missing. . . .

Wikipedia Entry

and:

Although originally intended for use in clinical settings, the Amsler grid has proven highly adaptable for home monitoring. Its portability and ease of use enable patients to participate actively in the management of their ocular health, allowing earlier detection of disease progression and more timely medical intervention.

the Amsler Grid in Everyday Practice

This idea of it being for use at home connects to my desire to use whatever materials and words I can find around me for this Holes series. There’s more there, I think.

I’d like to spend a few minutes (maybe later today or tomorrow morning) writing more about lines and grids and mapping and why it’s important to me, both in this series and in my understanding/description of my vision loss.

While looking for more on Amsler and the grid, I found out about Edward Munch and his vision loss at 60. As he was experiencing it, he drew a series of sketches/paintings, some with grid lines, some annotating the strange ways he saw. Very cool. Here’s more about it from a exhibit at the Tate. Is there a book for the exhibit and could it be at my local library? Yes! I just requested it.