Today I had a blood test to re-check my iron and my thyroid in the morning. No coffee or food until it was done at 11, so also no running. Just sitting and writing and witnessing the world outside my windows: walkers, one runner, some dogs, the little girl at the daycare next door named Mabel stopping a walker and forcing a conversation, elementary boys — so LOUD — running down the street.
New Yorker Experiment / Holes
A slight shift in my first hole poem. Instead of, another name for barely not blind is a hole in your vision that makes for an uneasy fellowship with the world, it is, another name for barely not blind is a hole in your vision that makes for an uneasy fellowship with the word. So, word not world. Since this poem is about how I read, word makes more sense to me. Part of me would like to keep both world and word, but most of me thinks I should keep it simple with word.
In my draft version, I’ve hastily shaded in the circles/my blind spot with pencil, so they are all gray blobs and dots. The only times I recall seeing gray blobs are: looking at a backlit face and staring at the wall for several seconds. When I look at text, like on this screen, I see a few words in the center and then . . . what? Difficult to put into words. Everything is buzzing, shifting, textured. I want to experiment with the blind spot blob in my poem by adding texture — I mentioned adding gauze or glitter on 8 march. RJP and I are planning to visit the Stashery at the Textile Center this week to see if I can find some cool materials.
While I let that simmer, I’ll return to the last page of experiment #5 (continued from 9 march):
words that stand out from Whisker Wars, page 3
- face / faced
- self-mastery
- the Lord knows who
- hold outs persist ed
- who was as devoted as
- you might think
- emerged
- embraced
- writing
- float /ed
- only
- unprofitable
- propaganda
- a sideshow staple / enfreakment
- mishaps
- cannot fully explains
- died
- few of us see
- express rapture at seeing
- poem reads
- endures
Here’s what I have so far:
nothing still
details
drift like snow
cut off heads
with pewter-colored faces float
a hole through the bottom
of the known world.
here it is unprofitable
to have faith / to put faith / to believe
in the visible / what is visible
an uneasy fellowship with the world
As of now, I’ve decided to use the line uneasy fellowship with the word, but I also do have an uneasy fellowship with the world because I am barely not blind. Here’s an example of that uneasy fellowship from today’s visit to the clinic for a blood test:
I walk into the clinic with Scott and he points out the line for me to stand in as I wait to be checked in. It’s happened so fast that I have not had a chance to read the sign that tells me what this line is, I just know I’m supposed to stand in it. So I stand and wait with the person behind the counter directly in front of me, several feet away. There is another line with people in it, waiting, with a person behind the counter directly in front of them. I wait, looking vaguely in front of me at the person behind the counter and the person they are helping, trying not to stare or look as if I’m impatient (even though I am). To the side, I notice the person being helped at the other counter is done and hear the woman behind that counter tell the person in her line, wait. Then I hear her call out sharply, Scheduled! And then, Scheduled! I wonder what she means; it sounds strange. And then, Scheduled! I feel several quick, sharp pokes in my back. The person behind me is trying to get my attention. I realize that the woman behind the opposite counter is calling out to me. I am “Scheduled” because I have a scheduled appointment.1 Oh, I’m sorry! I approach the counter and she barks at me, name and date of birth! She softens a little after I answer promptly.
For a flash, I wanted to cry, but didn’t. It is such a small thing that doesn’t really matter. For a brief moment, I was that person, the irritating one in the line that wasn’t paying attention, holding everything up. Yet, it is a reminder of what I can’t do, or what I can barely do, or what I can only do with a lot of effort — and patience from those around me. It is a reminder that I am nearly (legally) blind.
I suppose these moments might matter less the more I experience them — both because I’ll get better at accounting for them and better at not being bothered by them. And I suppose I should experience them more. I just told FWA and RJP and they disagreed. FWA said “Choosing to be in those situations is like selling your soul!” Yes! Repeated this conversation to Scott and he said, but you do need to learn how to deal with these situations. I suppose. Maybe I can find some middle ground?
It helped to talk with FWA and RJP and have them not only validate but bolster my assessment of the situation as not my fault. A thought: did the woman say more than Scheduled!, but all i heard was that part? I don’t think so.
Get Out Ice
The ice at Lake Nokomis is fraying at the edges. Will the lake ice be completely gone by the end of the month?!
- Not to long after this happened I wondered: why didn’t she call out, person in the scheduled line or something with a bit more of an explanation. ↩︎