jan 30/BIKERUN

bike: 25 minutes
run: 3.25 miles
basement

While I biked in the basement, I watched this great video lecture by a neuroscientist from Harvard, Margaret Livingston about vision and art. Very fascinating–and something I’ll have to watch a few more times before I get it all. Near the beginning she says,

So if you take anything at all away from this talk tonight, please try to remember: Vision is information processing; it is not image transmission. Your visual system does not just transmit an image of the world up to your brain, because there’s nobody up there to look at an image. There’s nothing up there except nerve cells and all they do is either fire or not fire. So seeing is whether some neurons are firing and some neurons are not and what information those cells are extracting by the firing patterns from the pattern of light that lands on your retina.

Yes! Vision is not just using your eyes to see an image that gets transmitted to your brain. Vision is a complex series of processes involving light entering your eye through your cornea then landing on the retina, traveling through the optic nerve to the brain where it is processed not merely reproduced.

During my run I continued listening to the audio book, The Guest List. Wow, the men in this book are terrible; I was actually getting angry and sad about what assholes they are. Despite this, finally, three-quarters of the way through I am invested in listening to the entire thing and finding out how it ends. Whenever I make it to this point in a book where I’m finally hooked even though I had thought about giving up on it several times, I feel a sense of accomplishment.

a moment of sound

On the deck again. Listening to a crow and my neighbors’ scare rods spinning in the wind, sounding like the scratching noise that Voldemort’s soul makes in one of his horacruxes in the last movie. For the first 20 seconds or so, Delia joined me. You can hear her collar clanging, then the door open as she goes back inside. Too cold or boring for her, I guess.

Jan 30, 2021

Note: Working earlier today on some notes about vision, I think I figured out my new project: peripheral vision. So much to think about literally and metaphorically! I was inspired by a line I came up with:

If central vision represents the trees, peripheral vision is the forest. I will never lose the forest, even as the trees fade further away.

nov 5/RUN

2 miles
cooper school loop
60 degrees

Still waiting for the results of the election. Stressful. Feeling the panic simmering just beneath the surface. Slight tightness in chest, deeper breaths needed. Feeling hopeful and scared and impatient.

A beautiful day for a run. Maybe a little warmer than I’d like but sunny and calm. I wore shorts. I don’t remember looking at my shadow as I ran–was she there?–north on Edmund up to 32nd. Lots of people out walking and running. Did a loop around Cooper School. Heard some kids playing on the playground.

geese!

I don’t remember any geese on my run today but I do remember first hearing then seeing 2 different groups of geese flying fast through the sky. So fast! And pretty low in the sky too. I wonder if they were offering a warning about next week’s colder weather?

look at that bird high in the sky!

Walking home after finishing my run I noticed a speck out of the corner of my eye. Something moving high in the sky. At first I couldn’t see it because it was in my central blind spot. I kept trying to spot it my periphery. Suddenly it appeared. I could even see the wings moving. How was I able to see it? Did my brain finally guess correctly or did the bird move into an undamaged part of my central vision? Vision is so strange and fascinating.

Mood Ring: Bewilderment

I’m working on another mood ring poem. After trying to find the best word to describe it I have decided on bewilderment. Here’s a line that I want to use somehow from Mary Ruefle:

The difference between myself and my student is that I am better at not knowing what I am doing.

Not knowing what I’m doing or seeing is a constant experience for me. Learning how to deal with that disorientation, discomfort, uncertainty is a big goal. It used to be central to my pedagogy in the classroom, now it’s central to my daily life.

oct 9/RUN

2 miles
45th ave, north/32nd st, east/tunnel of trees, south/edmund, south/37th st, west
69 degrees

Warm this morning! We might hit 83 today. No thanks. Still, it was beautiful running through the neighborhood and by the river. Glanced at the water a few times and it was glowing in the sun. The tunnel of trees was glowing too: marigold. I love that color. I didn’t encounter a single runner on the narrow trail winding up to the ancient boulder. No stones stacked on top of it. I forgot to greet the welcoming oaks or check if they were a goldengrove unleaving.

Today’s October Surprise

This surprise comes from our long walk last night, all the way to turkey hollow and back. Walking round the neighborhood, Scott and I encountered bright, beautiful wildflowers still blooming. Light purples, dark purples, oranges, yellows, hot pinks. And halfway up a cedar fence, a trail of flaming red leaves. I noticed them first in my peripheral, the feeling of a bright color. Then, looking at them straight, I could see the red. Scott took a picture, after I asked him to, of some funky purple flowers:

https://www.instagram.com/p/CGGqzLqnozU/

sept 18/RUN

3.15 miles
neighborhood/lake street bridge/river road trail
46 degrees

Wonderful fall weather! Sun, crisp air, changing leaves, uncrowded sidewalks/roads/paths! I ran over the lake street bridge again. A bit windy; I could feel one chunk of my hair coming out of my pony tail and flopping around just above my visor. How funny did it look to the drivers passing me? The river was a beautiful blue. No rowers on the water. No canoes or motor boats either. I don’t remember seeing any leaves changing on the tree-line along the river’s edge. Still all green. Soon, red, orange, yellow. Then my view comes back. Coming off the lake street bridge and heading south on the trail, I overheard some bikers talking about today’s stage of the Tour de France. Nice! Heard some geese honking overhead–high in the clean blue air.

https://twitter.com/danalevinpoet/status/1304885340654702593?s=20

I love this idea of yielding to a poem or an idea…or the gorge. I think of it in relation to being open and generous and willing to listen (and to hear and to notice).

mood: wonder

Another day of working on my writing project on vision loss and mood. This morning, while watching the Tour de France, I noticed a sign with an exclamation mark on it quickly flash across the screen and pointed it out to Scott who hadn’t noticed it. I wondered, how is it that I could see this sign (and while Scott couldn’t) but miss so much else when I’m watching tv? How does my vision work and not work?

I bring this up in the current draft of my wonder poem in 2 ways.

To witness the spot of my unseeing usually concealed behind the smoke and mirrors of softened forms and filled-in gaps is astonishing. What impossible magic enables me to see anything with this ring obscuring my view? I like staring at it until my eyes ache, my head hurts. Observing how it moves slightly when I shift my gaze. How it grows bigger when I cover my left eye, smaller when I cover my right. How it begins to pulse, then fade, then flare, a fiery black hoop burning through my thinning retina. What a strange feeling to watch this show and suddenly know it is more real than the illusions my brain offers as sight.

1. impossible magic

How can I still see as well as I can with so many of my cone cells gone? How does my brain make sense of the limited information it’s receiving from the few remaining cells? Most of the time when I am curious about this, it is with awe and astonishment. What an amazing organ the brain is! It’s fascinating to learn about how the brain/mind compensates for lack of information, how it guesses, how it fills in the gaps.

Last week, I learned about Charles Bonnet Syndrome which is a phenomenon that can happen to around 15% of people with macular degeneration. It’s named after the man who first described it, having noticed it in his aging grandfather. When the brain doesn’t receive visual data from the eyes it provides its own images, either making them up or recalling stored ones. This causes visual hallucinations. People with CBS usually experience these hallucinations when they wake up and they don’t last long. The favorite hallucinations I read about in this article were

  • people dressed in costume from an earlier time
  • imaginary creatures, like dragons

What? Somewhere else I read about how the hallucinations are smaller, so you see tiny people dressed up in costumes. Nice! Thankfully, when you experience this, you know it’s a hallucination. I don’t have this syndrome. Instead, my brain likes to fill in the gap with a background that matches the area surrounding the missing image. So, while someone with CBS has hallucinations and sees something that isn’t there, I have a different problem: what is there is hidden behind a background (like a blank, blue sky or more green trees or endless waving water–all 3 of these have happened to me) with no indication of its presence or my inability to see it. Is there an antonym for hallucination? It is not that I see things that aren’t there; it is that I don’t see things that are there and I have no idea that I’m not seeing them–until suddenly, without warning, I do, like a bike that wasn’t there appearing beside me in my peripheral vision. I think this happened to me a lot more right after my vision declined in 2016. Has my brain figured out how to compensate for it?

2. optical illusions

Much of the time, even for me with my increasingly bad vision, the brain’s tricks for filling in gaps and working with incomplete visual data are hidden. I might see things a little fuzzier but I still see them. Unless I concentrate, I can’t see the ring scotoma in my central vision. There is no dark black ring on the page when I’m reading. But it’s there and when I found it by staring intently at a blank wall, I was astonished and fascinated. I was also relieved. Here, with this ring, was evidence that my vision is declining, that I’m not making this bad vision thing up. Because my brain is so good at compensating and performing magic tricks, it can be easy for me to think my eyes are better than they are, that I’m seeing more than I am.

sept 13/RUN

2.5 miles
river road, south/42nd st, west/around Hiawatha Elementary/43rd ave, north
56 degrees

Another good morning for running. I don’t remember much. Too busy looking out for other people. Started on the trail but it was too crowded so I moved over to Edmund and then ran up 42nd. Didn’t see the river or hear any memorable birds. No dropping acorns or honking geese. No clickity-clacking roller skiers or bikes blasting Jimmy Buffet songs. Saw a runner I’ve seen at least once before on the trail who annoyingly takes over the entire path and doesn’t move over. He has a strange, bouncy stride. Heard some yipping, spazzy dogs at the Hiawatha playground. Smelled some cigarette smoke and wondered if it was coming from the walker ahead of me. Ran by the door that my kids used to come out when they were done with school. All the students would bunch around the teacher trying to point out their parents so they could leave. I remember waiting forever because my kids (like me) weren’t aggressive enough to get the teacher’s attention. I was very happy when they got older and I didn’t have to wait for them near that door anymore.

Blind (r) ing

I haven’t been memorizing poems for a few weeks now. I’ve moved into working on my mood ring project. Yesterday I did some more research and found out a few things I’d like to play around with:

A blind spot in the central vision is also called a scotoma. Here’s a longer definition from Enhanced Vision:

A central scotoma is a blind spot that occurs in the center of one’s vision.  It can appear in several different ways.  It may look like a black or gray spot for some and for others it may be a blurred smudge or a distorted view in one’s straight ahead vision.  Scotomas may start out as a small nuisance and then get larger or there may be several blind spots or scotomas that block one’s field of vision. 

Right now, I think my scotoma is somewhere between a blurred smudge and a distorted view. At the end of the brief article, they offer a few tips, including:

Find and use your preferred retinal locus.  A person looks slightly to the side so that the blind spot or scotoma is not in their central field of vision. One author describes it as “not looking at what you want to see.”

Not looking at what you want to see.

So much I want to do with this idea of not looking at what you want to see. Thinking about Dickinson and “tell all the truth but tell it slant” and the periphery and soft attention. I’m also thinking about how sometimes when I’m talking to Scott and I can’t see his face, I will look just a little to the side, over his shoulder. Then I can see his features. He says this looks strange. I bet.

Another useful term/idea is filling in: The manner in which the brain deals with inexplicable gaps in the retinal image. When an object enters your blind spot and disappears, instead of seeing a shadow or dark spot, the absence is filled in with the background color. So you can’t see that you’re not seeing. Because my blind spot is larger and in my central vision, I experience this a lot more than “normally” sighted people. Sometimes I wonder how often I’m not seeing without knowing.

At the end of an article about filling in and the various experiments you can do to see it, the authors conclude:

These experiments show how little information the brain actually takes in while you inspect the world and how much is supplied by your brain. The richness of our individual experience is largely illusory; we actually “see” very little and rely on educated guesswork to do the rest.

I love this idea of how limited everyone’s vision is and the incorrect assumptions many have when thinking about what it means to “see.” I’m not sure I would have spent much time thinking about any of this if I hadn’t lost my central vision. The last line about educated guesswork reminds me of Aldous Huxley’s book The Art of Seeing and his writing about Dr. W.H. Bates’ visual education method.

In the preface, Aldous writes:

Ever since ophthalmology became a science, its practitioners have been obsessively preoccupied with only one aspect of the total, complex process of seeing—the physiological. They have paid attention exclusively to eyes, not at all to the mind which makes use of the eyes to see with.

Bates’ method pays attention to the “mental side of seeing.”

And here’s another great definition of filling in from this helpful article:

What is filling-in? It is the phenomenon in which an empty region of visual space appears to be filled with the color, brightness or texture of its surround. The brain is capable of filling-in the blind spot, borders, surfaces and objects.

Okay, I’ll stop here for now.

july 14/RUN

3 miles
river road, south/north
73 degrees/ light rain
humidity: 89%/ dew point: 70

Woke up to darkness. Rain coming and staying all day. Decided to take Delia the dog out for a quick walk before it started. Not soon enough; by 1 block it was drizzling and by 2 blocks raining. We ran back. Delia did a great job–except for the time when she ran right in front of me and almost tripped me. Maybe I should try training her to run?

Running felt good so I decided if there was a break in the rain, I would go out for a run. There was and I did. Hardly anyone out by the gorge. I was able to run on the trail right above the river for most of the time. Hooray! I saw the river, heard some birds, ran by my favorite benches, heard the roar of the water gushing out of the sewer pipes down to the river near both ravines — at 36th and 42nd. And then, at the end, I ran through the Welcoming Oaks and greeted each one, “good morning!” “good morning!” “good morning!” Haven’t been able to do that in a while.

color

There’s something about cloudy, gray light that makes my vision even stranger than usual, especially when it comes to seeing colors. I am amazed that I can still see any color with almost all of my cones damaged. Here are some colors I saw this morning, some stranger than others:

  • From about 2 blocks away from the river road, I could see an orange sign for a pedestrian detour. So bright and so prominent, a glowing smudge in the midst of fuzzy dark green and gray.
  • Twice I encountered, from a distance of about 15-20 feet, a woman in blue running tights. As I approached her, seeing her through my central vision, the tights looked dark, almost navy blue. But when I saw her from the side, through my peripheral vision, the rights were a bright, electric blue. Blue is a strange color with my vision. Last winter, I used to walk by a house with lights in the shape of a peace sign. The circle was red, the inner sign blue. Looking at the sign straight on all I could see was a red circle. It wasn’t until I looked at it from the side that I could just barely see the blue lines.
  • A walker in a pink–or was it coral?–jacket.
  • The river was a pale blue, almost white in the gray light.

on the dream, forgiveness, and forgetting

Still thinking about Marie Howe and “The Meadow,” especially these lines, “My love, this might be all we know of forgiveness, this small time when you can forget who you are” and “Bedeviled, human, your plight, in waking, is to chose from the words even now asleep on your tongue, and to know that tangled among them and terribly new is the sentence that could change your life.” In yesterday’s entry in my plague notebook, I wrote: “We forget what we are because what we are are creatures attempting to find the right words to feel better — less alone, less suffering, less closer to death.”

I want to think more about the value of forgetting. Here’s a poem I’d like memorize to get me started:

Let It Be Forgotten/ SARA TEASDALE

Let it be forgotten, as a flower is forgotten,
Forgotten as a fire that once was singing gold,
Let it be forgotten for ever and ever,
Time is a kind friend, he will make us old.

If anyone asks, say it was forgotten
Long and long ago,
As a flower, as a fire, as a hushed footfall
In a long forgotten snow.

may 21/RUN

3.25 miles
1.5 mile loop*
61 degrees

This summer, I’m planning to do more loops. Today I decided to do an easy run: 2 loops, starting at 36th, heading south on the river road, turning right on 42nd, then heading back north on edmund. One loop = 1.5 miles + .25 mile run to the river.

green as mood, feeling

Overcast this morning and warm. Everything was green. Thought about the idea of green as something you feel instead of see. What does it mean to feel green? Today’s green, in the absence of bright sun, felt calm and floating. Not solid or sharp or singular but part of everything else–pavement, grass, dirt, trees, sky, birds, the little kid speeding away from his dad on his bike.

I quickly googled green mood and found an article about it: What Does Green Make You Feel. Popular answers: calm, excited, stimulated, compassionate, optimistic, natural, fertile. Some that weren’t mentioned, but that I think about: energized/over-stimulated, mystery, envy, greed, naiveté, queasiness, growth/abundance/excess.

reciting while running: What Would Root

Recited What Would Root again as I ran. The entire poem took about a mile to speak in my head–with a few stops and starts with the words. I thought a little bit about the refrain “I could see everything; it was all green.” Then I thought about how I, with my damaged cones, sees green. Am I actually seeing green–and, how much? Is some of this seeing the memory of green or the logic of green—my brain knows that in spring and summer, trees are green, so it “tells” my eyes to see green? I don’t know. I feel like I’m actually seeing green but how many functional cones do I have left? Could I be seeing green through my peripheral? Lots of questions.

When I finished my run, I recited the poem into my phone as I walked home. I got it almost totally right–I forgot the line, “I sat down, feeling the hairs on the back of my neck, understanding for the first time that they were not hairs, but roots.” It is fascinating to have the poem in front of me and then listen to my recitation, seeing what I get right, what I don’t, which articles/words I add or omit.

what would root, may 21

march 16/RUN

4.25 miles
top of the franklin hill and back
35 degrees
snow, big fluffy flakes

Feeling a bit better today. Wonderful and strange to be outside, trying to avoid encounters with others while breathing in the beautiful fresh air. Dark and gloomy. It started snowing just after I got outside. At first, very light. Then, big fluffy flakes flying right into my face–I should have worn my baseball cap or visor to block them out. Oh well. The snow didn’t bother me too much although I wondered if it was the best idea to be outside with a cold or sinus infection in this weather. I think it’s fine. It feels important to get out by the gorge as much as I can.

Was able to do all the walking trails, including the one through the tunnel of trees which is not a tunnel right now but a bunch of bare branches and trunks. The floodplain forest was a beautiful, fuzzy brown. I know I glanced at the river but I don’t remember what color it was or how it looked. I think that’s because of all the snow flying in my face. The gorge was a misty, blurry white. Encountered a few walkers, one or two runners, and Dave the Daily Walker, back in uniform! I’m glad he’s feeling better.

I remember admiring the railroad trestle as I ran by it, noticing the river below. Also, glancing at the Winchell Trail, close to Franklin. The trail looked like a muddy mess.

Memorized a new poem for today’s run:

Tell all the truth but tell it slant/ Emily Dickinson

Tell all the truth but tell it slant—
Success in Circuit lie
Too bright for our infirm Delight
The Truth’s superb surprise
As Lightening to the Children eased
With explanation kind
The Truth must dazzle gradually
Or every man be blind—

It was fun to recite this over and over again as I ran. I really love Emily Dickinson’s poetry–her phrasing, the rhymes, the rhythm, the ideas. I think (I don’t know that much about Emily Dickinson right now–maybe I should learn?) this is one of her more famous poems, especially the idea of telling the truth slant. I like it because of how it fits with my vision. I read that Dickinson became blind temporarily for a few years and that she wrote about it in her poetry. With my cone dystrophy, I rely much more on my peripheral (sideways, slantways?) vision to see. And, while I need bright light to see and read things, if the light is too bright it makes it almost impossible to see. Also, my unfocused, fuzzy vision is softer and less harsh, which sometimes results in kinder, more gentle visions–things that might look ugly in sharp edges and lines, appear beautiful in the soft, fuzzy, absence of detail (one example: gnarled, bare branches in the winter).

feb 26/BIKERUN

bike: 25 minutes
bike stand, basement
run: 1.5 miles
treadmill, basement

Decided to bike and run in the basement today even though it wasn’t too cold (20 degrees) and the path was clear. Always trying to make sure I’m not running too much. Watched The Ring while I was biking. I think this movie, which is about 17 years old, holds up. Creepy. Extra creepy when you watch it on an iPad with headphones in a dark unfinished basement. Listened to my new (Sara 2020) playlist while I ran: Nur-d, Beck, Prince. Nice combination! At one point, felt like I was in a trance, my feet barely touching the moving floor.

Right now I’m reading Georgina Kleege’s Sight Unseen about macular degeneration and being blind and the over privileging of vision. She has 3 chapters on the phenomenology of blindness, which she describes as “attempts to capture in words the visual experience of someone with severely impaired sight.” So helpful! I don’t have the exact same thing that she does (and not as severe…yet), but it is very similar: damaged macula, loss of central vision, still intact peripheral vision. In the chapter, “the mind’s eye,” she writes about the blind spot her damaged macula creates in the center of her visual field. She describes how she can, with effort, see it when she stares at a blank wall.

I decided to try finding my blind spot. I stood about a foot away from a bare white door and stared into the center of it. After a few minutes, a darkish (dark gray?) circle–or was it an oval?–appeared in front of me. In its center was another circle which was white. This inner circle was a little less than a quarter the size of the darker circle. This darker circle is my blind spot; the much smaller inner circle is what is left of my combined (left and right eyes) central vision. Pretty wild.

Found this great PBS video with Kleege.

feb 24/RUN

5.5 miles
franklin hill turn around
39 degrees
5% slick ice covered

Waited a little longer to go out running this morning. Needed to let the thin sheets of ice covering the puddles melt. A nice day for a run! Not too much wind, not too many people. Sun. Clear paths. I got my layers right today: 1 shirt, 1 vest, 1 pair of running tights, 1 headband, 1 pair of gloves, 1 pair of socks. It was warm enough today to smell the earth thawing–why does it smell like dog poop? I think I like the smell of death in the fall–the musty, mulching leaves–over the smell of life in the almost spring.

David Lee Roth is in town with KISS for a concert tonight. Scott read somewhere that he always brings his bike to Minneapolis and loves biking along the river. Today, I kept looking for him, hoping he’d bike by. No luck. Bummer.

Glanced down at the river a few times. Enjoyed hearing the sibilant sounds of my striking feet on the grit covered path. Ran hard up the hill, then stopped to a walk for a few minutes when I reached the bridge. Thought about the body that was found just north of this bridge early yesterday morning. Managed to mostly avoid the secret slippery spots where the water on the path was still frozen. Also managed to avoid getting soaked by cars rushing through big puddles on the road.

With less than a mile left, I had an idea about my current project and decided, even though I was running well, enjoying going faster, to stop and record my thoughts.

Uh oh.

Just tried to find and transcribe my voice memo, but it wasn’t there. I must have hit the wrong button when I was trying to record it. Here’s what I remember. For a few minutes before stopping, I was chanting. How to be/periphery, How to be/periphery. Then I realized: I need a (big) project to focus on, a project that involves structure and daily practice. A concrete project. This is the project I think I’m working on–and in many ways, it is what I’m working on–but, I’m also working on something else, off to the side, at the periphery, which is the real work I need/want to do. What a bummer. I feel like I can’t remember a key to my thought that helped it make sense. It connects with the article I read about how to be a procrastinator a few years ago, and with the idea of not approaching projects/thoughts/goals head on, but slant or sideways or sneakily (tricking your brain). Argh! I wish I hadn’t screwed up the recording.

My Weather/ Jane Hirshfield

Wakeful, sleepy, hungry, anxious,
restless, stunned, relieved.

Does a tree also?
A mountain?

A cup holds 
sugar, flour, three large rabbit-breaths of air.

I hold these.

What do I hold? Ever since I encountered the phrase, “inner and outer weather” (from a Frost poem about a tree at the window, via Edward Hirsch), I have been thinking about weather as metaphor for one’s mood/emotions/feelings. Love this poem and how it plays with this idea. And I love imagining how much air is 3 large rabbit-breaths worth. How big is this rabbit? And, in general, how big are rabbit breaths?