am: 25 minutes
neighborhood
40 degrees
One more day to rest my back. It only feels a little sore, so I think it’s okay, but I’m trying to be cautious. This is the longest break (5 days) I’ve taken in a year? I’m not sure. Another morning walk with Scott and Delia. Sunny and spring-like. All the snow has melted, almost all of the puddles have evaporated.
Picked up a new pair of Brooks’ Ghosts in the early afternoon. I’ll save them for after late April/early May, once sloppy season is done . Black with white and gray. On my walk I wore my bright yellow Saucony’s — the ones that hurt my feet last year. I’m going to give them another chance. Maybe they’ll work this time?! Forgive me, future Sara.
the purple hour
No purple hour last night. I slept straight through, only waking up briefly at 5:30 when Delia jumped on the bed. This sleeping straight through only happens a couple times a month.
In non-purple hour purple thoughts, yesterday afternoon I finished listening to/reading along with JJJJJerome Ellis’ Aster of Ceremonies. So good! The connection to purple is: purple asters, a big chunk of the book is printed in purple ink, I envision the Stutter/pause as purple. Here are some passages I want to remember:
Dr. Bejoian, a speech therapist I worked with from 2012-2013, taught me a technique called soft contact. “If you’re struggling to say a word that starts with p, b, or m, try starting the word as softly as possible.,” she said. Sometimes this made the syllable hard to hear. “Pause” could sound like “awes”; “brain” like “rain”; “master” like “Aster.” I want to follow this softness offered by the Stutter. Thank you, Dr. Bejoian.
For most of my life, my relationship to my stutter was rooted in shame, anger, and despair. I responded to these emotions by trying, and failing, to master my stutter through various means: undergoing hypnosis; making a fist while I stuttered, opening the first to release the work; talking in singsong; expanding my diaphragm while speaking; saying my name is “John”(my middle name) or “Shawn.” Failure has led me to a grove of unknowing. If I can’t master the Stutter, what can I do? What might it mean to try to Aster my stutter?
Aster of Ceremonies (123) / JJJJJerome Ellis
Follow the softness. I love this idea and generosity (to Self and Stutter) it offers. My vision gives softness too, not in sound, but in image. Things that are never in sharp focus are never harsh or exact, but fuzzy and gentle.
Teach me to Aster You. Teach me to treat You as an Elder that has so much to teach me. I will surrender and attend to Your ensemble of blossoms. Your Dandelion Clock* will be my timekeeper. I will seek not to overcome You but to come with You; not to pray to be rid of You, but to pray for your continued presence in my life. To stay with the mystery You steward.
What might it mean to Aster You? To pray that You Aster me? Instead of “I speak with a stutter,” what if I “advertised” to someone by saying: “I speak with an Aster. My speech is home to a hundred blooms. These silences you may hear hold more than I could ever know. Thank you for your patience as I pause to admire their beauty.”
Aster of Ceremonies (124) / JJJJJerome Ellis
I was incredibly lucky to find, a few years into my diagnosis, Georgina Kleege’s book, Sight Unseen. Her generous approach to her own central vision loss — including not understanding it to be a death sentence and giving attention to how her seeing works and to challenging assumptions about the infallibility of vision — helped me to be curious about how seeing works and to develop my own relationship with both being without seeing and seeing in new ways. Even as I struggle with not being able to see that well, I also welcome the new knowledge my strange seeing/ not-seeing is giving me. I imagine Ellis’s “astering the Stutter” to share some similarities.
Ellis connects his Stutter to the Aster and to the many plants (he names them Elders) that his ancestors relied on. They feel a strong connection to these Elders. Such a powerful idea to bring all of this things — ancestors, plants, a glottal Stutter — together. Wow! Inspired by this approach, I’m thinking about how I experience my central vision loss in relation/beside the gorge and the eroding rocks and relentless, remembering river. What ceremonies could I create to honor the different layers of rock? The seeps and springs and floodplains? How does the wearing away of stone, the persistence of water, and my eroding cone cells open a door to a new space in which to dwell to explore to learn from? ooo — I like this idea. I want to give a little more time to thinking through how Ellis makes their connections, and how I can make mine.