Month: September 2020

sept 30/RUN

2.5 miles
two trails
59 degrees

For some dumb reason, I thought that running a bit later (almost noon) when it was very windy (20+ mph) would result in less crowded paths. I even thought the lower trail would be empty. I was very wrong. I probably encountered the most people I ever have today. I got much closer than 6 feet several times and had to call out “excuse me.” Oh well. If I ever consider running on the Winchell trail again, I will have to make sure and wear a mask the entire time. The river road trail was crowded too. I did a lot of weaving. I’m pretty sure I had a few ridiculous performances, weaving out into the road to avoid people, then quickly stopping to tie my shoe, then starting up again, trying to avoid having to pass the walker I had just passed again.

It was beautiful down there on the Winchell Trail, below the road, with so many leaves swirling around and glowing and painting the trees in reds, yellows, oranges. And, o the river! Such a bright blue in the sun. And no thick leaves to block my view!

a moment to remember

Turning down at the 44th street parking lot to run on the Winchell Trail, two bikers were walking their bikes up the hill, framed by a few bright yellow trees and the wide, blue river. Suddenly a gust of wind caught them by surprise and one of the women yelled out, “Whoop!” –or “whoa” or something like that. I think I like “whoop” the best. One day, maybe I’ll manage to fit this moment into a poem.

Speaking of poems, I finished my fourth mood ring poem: Loneliness. It’s the first of my poems about my darker moods. These are harder for me to write because my inclination is not to dwell in the bad feelings. I am wondering if it is too dramatic in its darkness? The poem is inspired by Ada Limón’s “Instructions on Not Giving Up” and uses her first two sentences as a guide. (“More than the fuchsia funnels breaking out of the crabapple tree, more than the neighbor’s almost obscene display of cherry blossoms shoving their cotton-candy colored limbs to the slate sky of Spring rains, it is the greening of the trees that really gets to me. When the shock of white and taffy, the world’s baubles and trinkets, leaves the pavement strewn with the confetti of aftermath, the leaves come.”

MOOD: LONELINESS

More than the distorted letters that shift on the page, more than the bikes that appear without warning, it is the faded faces that really get to me. When the light is too bright, or not quite the right kind of light, or not bright enough, the features leave. Sometimes the outline of a nose, a mouth, ears, freckles remain, but the eyes, almost always, are dead. Lifeless. Lacking a spark. The pupils looking like black ballbearings. Othertimes, all that’s there is a dark blob, perched on the shoulders of my son, my daughter, my husband, a friend I have known for years. Aiming my eyes at a shoulder, I might catch a quick flash of an iris through my periphery. Mostly I rely on memory and recall the face I used to see. Imagine the flare of a nostril, the raising of an eyebrow. Wish for the reassurance that I am not alone, that someone else is here. Alien and alienating, an uncanny valley begins to form between me and and the rest of the world.

I’m still trying to figure out how to incorporate the rings–my ring scotoma–into or onto the poem. In theory, I’d love to do some poems within poems, but I’m not sure if it works. I’ll keep playing around with it. Now it’s time to work on some other dark moods: frustration, fatigue, feeling useless and old. I can’t remember if I wrote about this the other day, but I am struck by a mood I don’t have: anger (or rage). I am not angry about my failing vision. Is this because I had been living with it for so long, not knowing what it was, or even that anything was actually wrong with me–I blamed a weak will for any problems I seemed to have–and I was overwhelmingly relieved to finally know what it was?

Almost forgot to mention, but how could I?

Judith C. Puotinen: March 5th, 1942- September 30th, 2009

11 years ago today my mom died.

sept 29/RUN

3 miles
trestle turn around
50 degrees

What wonderful fall weather! Cooler, partly cloudy. I ran north on the river road trail and didn’t encounter too many people. Heard the rowers on the river, with the coxswain calling out instructions through their bullhorn. Saw the river, I think. Did I? I don’t remember noticing many brightly colored leaves.

Things I Remember

  • one roller skier skiing on the bike path, their poles clickity-clacking
  • a sudden shower of acorns–a whoosh then thump thump thump
  • a stroller right off the edge of the path, an adult and young kid under the lake street bridge, looking down at the river right by the edge of a chain link fence
  • running through the tunnel of trees, barely looking down, but noticing a few yellow trees

A good run, an opportunity to get lost and lose track of time.

And here’s the wonderful opening from Yi Lei’s Nature Aria. Very fitting for this windy, autumn day, when leaves are swirling and scattering:

Autumn wind chases in
From all directions
And a thousand chaste leaves
Give way.

sept 28/RUN

4.25 miles
river road trail, south/both sides of ford bridge/wabun park/turkey hollow/47th st/edund
51 degrees

Good-bye summer and hot, humid weather! Hello fall and winter and wonderful runs along the river! A good morning for a run, even if the wind was gusting and in my face for much of the second half. Heard geese honking in the sky and my shoes squeaking on the wet leaves. Dodged dropping acorns and swirling leaves. Every so often the sun came out–glorious. I think I remember the river occasionally glowing. Not too many people out on the trail. Running up the hill to the ford bridge, I saw a big turkey hanging out by a bench. I looked a couple of times to make sure I was seeing what I thought I was seeing–was I? Who knows for sure. Ran over the ford bridge for the first time since February. Then ran under it and over it again on the other side, looking out at Locks and Dam #1. Took a walk break through turkey hollow (no turkeys there today). Almost forgot: heard some kids playing on the playing ground at Minnehaha Academy’s lower campus.

Here’s a beautiful opening to a poem by Carl Phillips, Wake Up:

The road down from everything even you had hardly dared
to hope for has its lonely stretches, yes, but it’s hard to feel alone
entirely: there’s a river that runs beside it the whole way down,
and there’s an over-song that keeps the river company: I’m leaves,
you’re the wind…

sept 27/RUN

5.25 miles
franklin loop
55 degrees

Decided to run the Franklin loop today. I’ve avoided it until now because I’ve been doing shorter runs more frequently and because of the pandemic and trying to avoid other people. The first half of it was fine, but by mile 3 I was doing a lot of weaving around to try and keep my 6ft of distance. There were only a few times when I got closer than that. What a beautiful morning for a run! Overcast and coolish, not too much wind. So many bright, intense colors.

Things I Remember

  • Honking geese! A ton of them under the lake street bridge. I couldn’t see them through all the green, but I could hear their honks
  • One goose honk sounded so forlorn or was it angry? Now I can’t remember the call but it was strange enough that I spent a few minutes wondering if it was a goose or some other bird. Decided it was a goose
  • A lone rower on the river with the water as smooth as glass
  • One of the dirt trails that leads down into the gorge, framed by yellow leaves looking mysterious and inviting and dangerous

At the start of my run, thought about more of my moods as I lose my central vision, particularly how I need to spend some time on my darker feelings. I remember having some thoughts about it, but now, writing this log entry, all I can remember is this: some of what makes me feel awe and wonderment–that the brain can mostly hide the worst effects of my failing vision–is what causes doubt and uncertainty–if i can still read some things and see color and notice birds in the sky, is my vision really that bad? Am I exaggerating it? I know I’ve written about this here a few times already.

Here’s a draft of my awe poem”

MOOD: AWE

[epitaph] Legend has it that before an execution, King Charles II of England closed one eye and aimed his blind spot on the head of the condemned man. This allowed Charles’ brain to decapitate the prisoner before the axe took its turn.

Behold, the awesome power of sight! Not found in one destructive glance but in an accumulation of looks. Against the odds and in spite of damaged cones, misfiring signals, and incomplete data, these looks produce something resembling vision — an image, a feeling, a fuzzy form.  So much could go wrong, and often does. Yet, light, cells, the optic nerve, the visual cortex find a way. Through guesswork and improvisation, imagination and processes scientists still don’t understand, they ensure I see more than seems possible. O faithful cones! Dilligently delivering data despite dwindling numbers. Allowing me to see some color — greens and golds and pinks and blues. Enabling me to read slightly distorted letters. O clever, industrious brain! Tirelessly trying to make sense of scrambled signals. Conjuring images, filling in broken lines, concealing gaping holes and black rings. Making it possible for me to still exclaim, “oh my god look at that wedge of geese, high in the clean blue air!”

Listening to the Current as I write this and the new Janelle Monáe song came on, Turntables. I especially liked these lyrics:

There’s a boomerang boomin’ back, yeah
You laid the egg, now it’s ’bout to hatch, yeah
You gaslightin’, ’bout to meet your match, uh
You fuck up the kitchen, then you should do the dishes

One of my introductions to poetry was through song lyrics. I used to love listening to a song for the first time and reading the lyrics on the record sleeve, watching how the lyrics and rhythms worked together, often in surprising ways. Some day, I want to write song lyrics and collaborate with Scott on a song. So far, I haven’t been inspired.

sept 25/RUN

3 miles
turkey hollow
66 degrees

Before starting my run, I listened to a recording of my latest mood poem: awe. I was hoping to think about it as I ran but I quickly became distracted by the leaves and the effort and irritating bikers on the trail. I decided to run south on the trail. It wasn’t too crowded, but I did encounter several bikers, always biking too close to the dividing line between pedestrians and bikers. 2 bikers biking side by side were especially bad–one of them was way over the line, forcing me onto the makeshift dirt trail on the other side. I yelled, of course, Part of my anger over this is me being a crank, but a lot of it has to do with safety–with my vision, my reflexes are much slower and I wouldn’t be able to move out of the way fast enough if they were about to hit me–and how I see–my depth perception is off and it’s difficult to judge how close people are to me; I can’t alway see their edges and often it looks like they are deliberately trying to run into me.

Despite this annoyance, I enjoyed my run. I saw the river and many red, orange, and yellow trees. Heard some black-capped chickadees. Anything else? No turkeys in turkey hollow. Instead, I saw a kid running around in circles, enjoying the freedom and the breeze and maybe also making the leaves crunch as he ran. I did that last night while Scott, Delia, and I were on our walk. I love that sound!

This weather is a little too warm for running, but great for sitting in the backyard in my red chair under the crab apple tree. I think I’ll do that after I finish writing this entry.

Working on my third mood ring poem: awe

MOOD // AWE

Behold, the awesome power of sight! Not found in a single controlling, destructive glance but in the accumulation of looks made every moment that, against the odds and in spite of damaged cones, misfiring signals, and incomplete data produce something resembling sight—an image, a feeling, a fuzzy form.  So much could go wrong, and often does, yet the light and the cells and the optic nerve and the visual cortex find a way through guesswork and improvisation and imagination and processes that scientists still don’t understand to ensure that almost all of us see more than seems possible. O clever, industious brain! 

That’s all I have so far. I envision adding a few more sentences.

sept 24/RUN

1.2 miles
river road, north/south
62 degrees

3.1 miles
over lake street bridge and back
64 degrees

I was just about to leave for a run when my son asked if I could run with him for his online gym class. Of course! I wish he could learn to love running; I would worry much less about all the time he spends in front of his computer. We did a combination of running and walking. A beautiful fall morning. As we were walking I said to FWA, “It’s really fall now!” On cue, a swirl of leaves fell between us. (I looked up “collective noun for leaves” and got: pile and Autumn–really? An Autumn of leaves? Ugh. Decided on my own: swirl.)

After walking back home with him, I headed out again for my own run. Decided to run across the lake street bridge to check out the trees on the banks of the Mississippi. Big, bright slashes of red, orange, yellow! Not quite peak, but getting there. When I reached the east side of the river, I ran up the hill just past the steps and stopped at my favorite spot where the path is right on the edge of the bluff, above the tree-line, and you can see the blue water and the glowing trees on the other side. I stopped for a few minutes and admired an orange tree on the west side.

Yesterday I worked some more on my second mood ring poem. Happy to have figured out the story that I’m trying to tell: it wasn’t until my vision failed that I became very curious about how vision works and once I did, I learned all sorts of fascinating, delightful things. Here’s the text of the poem without the formatting:

MOOD // CURIOUS

All I remember from science class is the inscrutable image of an inverted tree, entering upright, then shrinking and flipping around. I don’t remember the retina or that it’s a thin layer of tissue lining the back of your eye or that at its center is the macula where some of the most important cells reside, waiting to convert light into signals that travel through the optic nerve to the visual cortex. I never thought about blind spots or tried to find mine or wondered about how much of what I saw was real or illusion. But when my brain could no longer hide the effects of diminishing cones I started paying attention. Now I’m learning about photoreceptors and the fovea and the number of cone cells in it and why they’re called cone cells and what the types of scotomas are and when the blind spot was first written about and how the brain guesses or makes up images when it lacks visual data and why some people, in the early stages of vision loss, hallucinate dragons and floating heads and little people dressed in costumes.

I have decided that each of these mood ring poems will be a block of text very similar in size and dimensions to the Amsler Grid, which is a grid you can use to check for macular degeneration. Each of the poems will have my blind ring on it in some way–lightly superimposed or darker, blocking the text, or maybe even creating an erasure poem. I’m still trying to figure it out. Here’s one possible version:

Originally, I made the “ring” text even lighter but I’ve been thinking I might want to make the ring become more difficult to see around as the poems continue–so the text would get lighter and lighter?

Here’s an amsler grid:

sept 22/RUN

3.25 miles
hill “sprints”*
67 degrees

* Warmed up by running north on 43rd ave, east on 32nd, south on Edmund. Jogged down the hill beside the Welcoming Oaks, then much faster, sometimes sprinting, up the hill 4 times.

Decided to try hill sprints for the first time today. I’ll call it a success because I set out to do 4, and I did 4. But it was difficult and I only ran hard all the way to the turn around on 2 out of the 4. I’m sure I’ll get better if I keep doing these. Listened to a playlist as I ran. Didn’t think about anything but getting to the top of the hill and then trying to slow my heart rate as I ran back down.

I ran through the neighborhood as a warm-up. So many beautiful leaves! Several bright red trees. One or two orange ones. A cluster of yellow. I could smell the dry mustiness of decay. Saw lots of acorns on the ground. Too many squirrels looked like they might dart out in front of me.

mood: curiosity

(I wrote this bit when I woke up this morning. It’s a very rough draft, but gives me some things to work with,\.) Before I was diagnosed with cone dystrophy, I never thought much about my vision. I never imagined that I would lose it. Even though I had been having problems for years seeing things—seeing the cursor on a computer or a ball being thrown at me or a bird in the sky—I never connected those problems with bad vision. I thought it was something else, maybe a weird quirk in my brain? Is this the wonder of the brain, its ability to work with limited resources, concealing how damaged our vision is?

I was never curious about my vision or how it worked. The only thing I remember from learning about how we see was the image of the inverted tree, entering the eye upright, then shrinking and flipping around at the back of the eye. I knew the terms retina (I think), pupil, iris, but I didn’t know the retina was a thin layer of cells lining the back of your eye or that at its center was the macula and in a pit at its center was the fovea where some of the most important photoreceptor cells reside, waiting to convert light into nerve signals that travel through the optic nerve to the visual cortex. I don’t ever remember hearing about rods or cones until my eye doctor explained that my cones were scrambling. I didn’t think about blind spots or try to find mine or wonder too often about how much of what I saw was real or illusion. If I ever thought about the limits of my perception, it was in the abstract, after studying the empiricists in my Modern Philosophy course in college. And a blind spot was something you had in relation to your biased and limited world view.  

I suppose I should have been curious about these things, I should have wanted a basic understanding of vision, but it wasn’t until my brain was unable to hide the effects of my diminishing cones and I learned I was losing my central vision that I payed attention. Part of this is because I take my body for granted when it’s working. Why question or scrutinize it when its doing its job? Part of this is because I don’t want to know how it works because once I know, I might think too much about how easily it might not work. And part of this is because I struggle to remember or understand anything with scientific jargon. 

But now, I’m curious. And I’m finding joy in learning about ganglion cells and the optic chiasm and the fovea and how many cone cells are in it and why they’re called cone cells and how the brain handles a lack of visual data (recalling past images, making stuff up) and how optical illusions work and the different types of scotomas and how to use eccentric vision (EV) to compensate for a loss of central vision and when the blind spot was first written about (1668) and two different Charles’s: King Charles II who loved to execute people with his blind spot and Charles Bonnet who first described the trippy visual hallucinations some people experience as they’re losing their vision.

sept 21/RUN

3 miles
the loop that kept getting larger
67 degrees

Warmer this morning. 80s later this afternoon. Windy. Heard several crows–an especially loud one right after I started running, another when I reached Edmund, near the spot they’ve identified as containing poison ivy and that they’ve marked with big warning signs. Didn’t glance at the river even though I ran on the river road as part of each loop but I did see Dave the Daily Walker! We greeted each other and remarked on how long it had been since we’ve seen each other. Was raced by a young kid as I ran up a hill beside his house. So much energy and exuberance. Encountered some workers filling a pothole in the road–they were wearing masks. Ran past some beautifully yellow trees on 47th ave. Can’t remember if I saw any red ones.

moment of the morning

Before my run, I walked Delia the dog. Right by one of my favorite houses–the one with the cat that has deemed themselves queen of the block (note added 21 sept 2024: the cat is male, so king — why do I think his name is Matt?), sometimes escorting you down the sidewalk, and with the bright orange and pink and yellow zinnias, and with the big water bucket for dogs with a Bob Dylan quote on it, and with the “Any Functioning Adult, 2020” yard sign–I heard the gentle singing of the wind chimes and the wind through a pine tree and crows softly (yes, it sounded soft, not harsh) cawing, and a trickling fountain all at once. What a wonderful symphony of sounds!

wonder mood: curiosity

Also before my run, I read through some of my notes and did some free-writing about wonder and my vision. I have three types of wonder:

  1. delight (finding my blind spot)
  2. curiosity (questions, facts, information, anecdotes about scotomas and seeing/not seeing)
  3. awe (the magic/power of my sight, and sight/brain in general)

As I ran, I thought about curiosity. At first, I had the idea (after running down the hill on 33rd and turning left on the river road) of doing a series of questions that I wonder about–a mix of questions about the physical process of seeing and other questions, like the classic childhood hypothetical–“Would you rather lose your hearing or your vision?”. Then later (I can’t remember where I was running when this happened), I thought about a block of texts combining some of the most interesting/strange/unsettling/important facts about blind spots into a cento.

Here’s a strange anecdote I discovered: King Charles II of England liked to aim his blind spot at a prisoner’s head before they were decapitated. Googling this, all mentions of this story lead to the neuroscientist Vilayanur Ramachandran and his mention of it in his popular articles about blind spots. Is this story true? After some more digging, I discovered this line from an abstract on an article about Faraday and his eyesight:

in the second volume of the Philosophical Transactions it is recorded that Mariotte demonstrated the blind spot ‘to the Royal Society before King Charles II in 1668.

Then I found Mariotte’s article from 1668 here. Pretty cool. In my brief search, I couldn’t find much else–no instances of King Charles II actually doing this, but I did learn that he helped create the Royal Society from which this paper comes and also a bit more about him and his reign (which I’m sure I learned back in 11th grade when I took AP European History). He was called The Merry Monarch, partly for the hedonism of his court–apparently, he was obsessed with sex–and partly because of how relieved/happy people were to be done with Oliver Cromwell and the Puritans. I also learned that in the 1660s, there was a lot of anti-Catholic hysteria with many Catholics being executed. Are these the prisoners that Charles II decapitated in his mind?

sept 20/RUN

2 miles
neighborhood + river road
59 degrees

Last day of the Tour de France. Decided to squeeze in a quick run before the bikers reached the Champs-Élyseés. Now, as I’m typing this, they’ve just reached Paris. A tougher run. Feeling tired and the left side of my lower back is a little sore. 2 miles was enough. More and more of the trees seem to be changing colors. I wonder when peak color will be? Running on Edmund, glancing over at the trail, I noticed lots of runners and bikers. No roller skiers. No noisy conversations. No music blasting from radios. No thoughts or worries or energy.

sept 19/RUN

3 miles
Hiawatha and Howe loop*
52 degrees

*36th st, east/edmund, south/42nd st, west/loop around Hiawatha Elementary/43rd ave, north/loop around Howe Elementary/44th ave, north

Ran the Hiawatha and Howe loop again. I have done this route for the past 3 weekends. A new routine? Running south on Edmund, I could tell it’s fall. Many of the trees on the rim of the bluff are changing colors–mostly yellows. Felt relaxed as I listened to George Michael songs on spotify: Careless Whisper, Faith, Freedom, Father Figure, Everything She Wants. Lots of people out walking, running, biking. I don’t remember seeing any roller skiers or turkeys or big groups of runners. Finished my run in time to watch the last hour of the second to last stage of the Tour de France. Pogačar–wow! This year’s tour has been a lot of fun to watch–so much drama and such cruel stages. The end of today’s time trial was a category 1 climb.

Last night, scrolling through instagram, I found out that Ruth Bader Ginsburg died. I gasped, felt a moment of terror, and then decided not to freak Scott out by telling him. This morning, I am choosing not to give into despair or to imagine worst case scenarios with facist dictatorships, but to believe in the possibilities of people rising up, resisting, and enacting radically transformation. Here’s a great quotation that one of my former students posted on facebook:

Restorative justice activist Mariame Kaba put it thus: “I always tell people, for me, hope doesn’t preclude feeling sadness or frustration or anger or any other emotion that makes total sense. Hope isn’t an emotion, you know? Hope is not optimism.” And she has famously said hope is a discipline. It’s a commitment to the future that must manifest as action. That discipline matters most when it is hardest. And when the stakes are highest. This is such a moment, with much to lose, and much to win.